Hey Friends!
Wow, is it really August already?! Of all my months here I think July went by the fastest. I can only imagine that this is due to having had the team here and time with a few other friends that stayed a short while longer. I can't tell you how much my heart was refreshed during this time spent with so many people I love dearly. What a blessing.
Things in the home are going well as well. Kids are all pretty healthy, praise God! The boys have been taking some meds for colds that they have, and Esperanza's currently on medicine to help with diarrhea, but overall nothing to seriously.
As some of you may remember, back in May we sent in blood work for Esperanza to identify what chromosome abnormality she has, mostly just to know, but also to find out if there would be major risks if/when we would be able to get her surgery, and finally, FINALLY! we have received the results! According to the analysis she has a rare disorder called Monosomy 21, which means she was born with only one of the two 21st chromosomes we are each supposed to have. I've been doing some research to try and find out exactly what that means for her then, but haven't found a lot of info. There are very few other cases where this has been diagnosed, but from what I can gather children that are born with this can expect to live a normal length of life, and it's probable that she will develop both physically and mentally somewhat slower than is typical, but what that really means I don't know. But I think it was a comforting diagnosis in a way, knowing that it could have been something much worse. Also, I don't know what this means for her as far as surgery goes, but I would say it's optimistic. The Hoffmans have been gone for these last two months but are expected to be home this week, so in another week or two I feel like I'll know more about whether we're on track to get the heart surgery for her in September or not. I'm praying that yes! But we will see.
Thanks for your prayers as always! I miss you all and am excited that I'm coming into the last third of my time here! It's exciting to see that the end is within reach, but I'm also excited to see how God continues to be faithful these next four months and how my kids continue to grow!
Blessings!
Samantha
Wow, is it really August already?! Of all my months here I think July went by the fastest. I can only imagine that this is due to having had the team here and time with a few other friends that stayed a short while longer. I can't tell you how much my heart was refreshed during this time spent with so many people I love dearly. What a blessing.
Things in the home are going well as well. Kids are all pretty healthy, praise God! The boys have been taking some meds for colds that they have, and Esperanza's currently on medicine to help with diarrhea, but overall nothing to seriously.
As some of you may remember, back in May we sent in blood work for Esperanza to identify what chromosome abnormality she has, mostly just to know, but also to find out if there would be major risks if/when we would be able to get her surgery, and finally, FINALLY! we have received the results! According to the analysis she has a rare disorder called Monosomy 21, which means she was born with only one of the two 21st chromosomes we are each supposed to have. I've been doing some research to try and find out exactly what that means for her then, but haven't found a lot of info. There are very few other cases where this has been diagnosed, but from what I can gather children that are born with this can expect to live a normal length of life, and it's probable that she will develop both physically and mentally somewhat slower than is typical, but what that really means I don't know. But I think it was a comforting diagnosis in a way, knowing that it could have been something much worse. Also, I don't know what this means for her as far as surgery goes, but I would say it's optimistic. The Hoffmans have been gone for these last two months but are expected to be home this week, so in another week or two I feel like I'll know more about whether we're on track to get the heart surgery for her in September or not. I'm praying that yes! But we will see.
Thanks for your prayers as always! I miss you all and am excited that I'm coming into the last third of my time here! It's exciting to see that the end is within reach, but I'm also excited to see how God continues to be faithful these next four months and how my kids continue to grow!
Blessings!
Samantha
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